About us

There are literally thousands of organizations in America that focus on diseases of the brain. Some are searching for a cure. Others help individuals who have been diagnosed with a particular disorder. Collectively, they help millions of people every year.

So, given this wealth of assistance, why did we create yet another brain-related foundation?

Because each of those existing organizations is inherently focused on their disease and those who have already been diagnosed with it. They aren’t focused before that when people are suffering from symptoms but don’t know which disease (if any) is causing them.

To put it another way, no one champions the undiagnosed.

Yet people who are suffering symptoms without a diagnosis are still suffering. Not just the symptoms of memory loss, but also the emotional trauma of not knowing what’s going on. And, because their symptoms are related to their memory and cognitive abilities, they often need extra help just to get a diagnosis.

We learned this firsthand when three of our family members were diagnosed with dementia in less than two years.

Each time we started the journey, we were on our own. It was up to us to educate ourselves about the human brain, determine if the symptoms were real or “just normal,” and figure out when and how to talk to a doctor.

Once we could name “it,” support was everywhere. But before then, it was a nightmare. For us and our loved ones.

So now, after three trips down the dementia diagnosis pathway, we’ve decided to do something about that nightmare. We’ve created a single location where people can find the clear, straightforward answers they need when they are trying to figure out what’s going on with their memory or the memory of someone they love.

It’s just one step in the journey, but it’s an important one. So, to help as many people as possible, we also give “seed money” grants to other nonprofit organizations to help them build outreach to individuals who are suffering from memory loss but don’t yet have a diagnosis. As a private foundation, we give away at least five percent of our assets every year for this purpose.

Once someone receives a diagnosis, we gladly refer them to organizations dedicated to helping people with the disease in question. That’s their area of expertise.

Ours is helping you start your journey.